OkayWolf

mostly a strange space ghost

  • they/them

Queer genre writer, printmaker, and pianist | ๐Ÿ‘๐Ÿบ | white settler Muslim disabled


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I think part of why I like the rain so much is that it sorta zeroes out my visual noise. Y'know when it's raining pretty decently but the raindrops are actually pretty small or even misty, and then you look at something kinda distant, like 80+ feet away? That's pretty near what my visual noise looks like, a static that's not actually obscuring anything, just changing how you look at it, makes ya focus a little more, or unfocus to see less noise-induced detail.

Does this mean I have to stare super fucking hard to figure out if it's raining or not outside when a light rain might be picking up? Yeah, that bit's a lil frustrating.


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in reply to @OkayWolf's post:

Been consulting a lot with people who have visual snow and related optic-field impairments, really blows how little we know about the specific causes. Neat that it associates with Sharp Edge Eye Syndrome, something that's been helping a lot with said consultations. If I see one in the hx, I ask about the other and get a "OH MY GOD SOMEONE FINALLY GETS ME" every single time.

I wonder why the average clinician isn't doing this kind of extremely basic Q&A and then remember their gig is 98% paperwork and dictation by volume.

Fully spent half a day testing whether I've Sharp Edge Eye Syndrome or not, because I'd never picked up on the cause and effect Xd

Honestly, most of my experiences with bringing up one thing is any comorbidities maaaaybe get an offhand mention while the medical professional goes "oh there's no treatment on file for that? Okay, just deal". Totally functional, totally universal healthcare /s

Yeah that's called a Cost Containment Strategy, basically if something is marginally out of scope with the professional's certified type of problem they can treat or outside of their documented knowledge, they'll push it off without further comment.

This is especially true for the U.S., U.K., and Canadian systems which all employ different types. I'm naturally familiar with the U.S. model and am becoming familiar with the Canadian one I'll be grinding against from here. People who are compensated by insurance-based systems especially have to contend with them. Sucks. Also some clinicians are just ass at their job, ofc.