CW for oh god what is my life (Endometriosis, Intersex issues, Bowels and Blood)
So we're right on schedule, my last update I think indicated that. It's always shocking to have a bowel movement and see just blood and red chunks to the volume that makes it appear as if it were a crime scene. Despite everything, the bleeding which began on the 27th had only a temporary pause as I worked on settling into where I've moved without eating all of the 28th.
So today, the 29th, has been very interesting. Not only in terms of volume of blood, but also rare opportunities to capture gibs blood clot specimen for closer inspection and photographic documentation. If you've ever seen red gelatin, you've seen my gibs. It really does look like some Half Life gibs, just bloody abstract red viscera that's smooth and squishy. Bleeding started on the 27th when I first passed a lot of clots, but didn't begin in earnest until last night when the lining really began to shed. I should be passing deminishing volumes of blood and clots each day until about the 31st to the 3rd, give or take. It's hard to live with, but the extreme pain is gradually resolving with each movement.
The blockage is definitely caused by swelling in-line with the hormone pathways stimulated by Prostaglandin E2, which would in my case be produced by ovarian tissue that is mixed in with my testicular tissue. Based on Ovotestis as the hypothesis (yet to be confirmed with biopsy), there is a link between the specific type of infertility I have and Prostaglandin E2 -- and excessive or abnormal secretion of Prostaglandin E2 is indicated as likely causal in Endometriosis. The plot thickens, as the hormone in question easily moves through membranes in the seminal vesicle and the Fallopian tubes -- hence why Endometriosis implants in various tissues around and near the Uterus.
Best way to put it for now is that I'm going to a Gastroenterologist and am going to ask for imaging studies to be run every week for six weeks (ideally to capture the full hormone cycle), plus a colonoscopy and ideally tissue sampling of the build up. We have to confirm the build up changes over time first, then capture it during the Luteal phase before my anal menstruation begins. As my cycle stabilizes, it's become easier to predict and manage, I'm nowhere near as drowsy and fucked up as I have been in the past. I still have narcolepsy symptoms 24/7, but they are far worse typically during this phase. That said, I still have a ways to go on determining the exact nature of everything. Supposedly, I can use urine tests to look at the Prostaglandin E2 hormone, but this is maybe outside of my grasp at the moment to get tested.
Increasingly though because of the bowel related issues bordering on total obstruction, total gonadectomy is looking to be the only route forward. You can't really inactivate gonadal tissue, the best we could do is maybe stabilize my hormone cycle with birth control. Even then, birth control isn't perfect nor is it even all that evident if it will be efficacious in my case. Regular E-HRT might accomplish similar goals. A silver lining is that my liver abnormalities might make more sense now, as doing research into this topic has helped me piece together some information about my digestive issues.