Alphadeus

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posts from @Alphadeus tagged #qtoid

also: #Dtoid, ##Qtoid

I went to the doctor for a diabetic eye exam. I don't have results yet for that but:

  • I lost around 7-9lbs since last month (320-322 from 329)
  • a1c (blood sugar number, not quite sure what it is) is now 8.3 (down from 9, still high, but progress).

And my blood sugar has been reasonable, at around 127 last time I checked. So it's pretty much all good news.



I didn't mention, mostly because it wasn't confirmed with me. Then I read my doctor's notes on the patient portal, and I'm taking it as confirmation.

I have some form of polycythemia. The body is producing too many red blood cells, which can lead to increased risk of clot, stroke, heart attack, deep vein thrombosis, and possibly other issues. The testing in 6 months will hopefully determine if it is Secondary polycythemia, or polycythemia vera.

There is no cure to my knowledge, but there are treatment options based on what kind it is. Stuff like Phlebotomy (removing excess blood), low-dose aspirin, and I forget the rest. Average life expectancy is 12-14 years with treatment, 2 years without. To me, average of 12-14 means could be 1 year, could be 30. Who knows. I'm just going to take it day by day.

I will try to keep you updated when I have more information. I think I mentioned my MRI for the mass near my liver is in May. Hopefully it won't be bad news. I don't know how to feel though. I guess I feel like more of a ticking time bomb than usual, as far as sudden death goes.