amydentata
@amydentata

After doing a lil more of my own digging and experimentation, it seems like my problem side might be down to a "clubbed foot" that was either poorly treated as a baby, or neglected by doctors and mild enough to become hidden by my hypermobility. Fits the symptoms, explains the thin "line of pain" on my right side, the internal "pulling" sensation (starts at the achilles tendon and runs along my entire body up to behind my goddamn eyeball), the combination of "subtle enough to miss, devastating enough to ruin your life," the very slow but continual worsening over my entire lifespan... all of the "mysterious" symptoms that not a single doctor could explain over the course of 20 years. I figured it out in three. Can't wait to talk to a podiatrist


amydentata
@amydentata

Score 5-0, total blowout, doctors aren't even on the board.

  • Ehlers-Danlos syndrome
  • POTS
  • Non-IgE-mediated food allergies
  • Pelvic torsion + apparent leg length discrepancy, caused by
  • Talipes equinovarus

I'm styling on these motherfuckers


amydentata
@amydentata

Did more PT and hit the usual plateau point where I get stuck and also feel a tug on what is probably my right Achilles tendon. This time I kept going, because now I'm pretty sure the tendon itself is too short, rather than the tug being just like, stiff muscles or something. The result is a pull on the outside of my foot and my toes, until they're all curling inward. Fucking classic.

This has been a very shitty 30+ year-long game, but I win


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in reply to @amydentata's post:

in reply to @amydentata's post:

guess i gotta go to a pode because yeah re tendon and my feet already wanting to curl + ball-of-foot walking

lol how did i miss this when investigating the leg length difference

how did everyone in my childhood miss the side walking in shoes 🙃