I sleep with a rumpled up blanket instead of a pillow, on top of a gentle incline foam wedge. I use the blanket because with EDS you need to do things like support your head so when you go unconscious it doesn't flop around. You can bunch up the blanket in places to provide supports. Anyways I just figured out a thing for side-sleeping, which is to bunch up some of the blanket in the crook between the base of the neck and shoulder. Basically a spacer, so the base of your neck doesn't collapse painfully. It's very very good
posts from @amydentata tagged #ehlers-danlos syndrome
also:
There's this pattern with my chronic pain, where a part of the body is the root cause of pain somewhere else, but the root itself doesn't hurt. It's like if you steal the covers from your partner while sleeping. They're shivering now, and you're cozy as can be, but your blanket theft is the root of the problem.
A lot of body parts are blanket thieves when you're hypermobile.
[Spike Lee voice after my ankle flops the wrong way and I fall to the ground] This is a hypermobile joint
EDS dramatically increases your odds of "could someone big please lie on me it's not a sex thing my body just needs this"