kobold

please gently the kobolds

  • they/them

  1. long covid-affected people have a function limit they cannot go past or else it will cause issues that "set you back 5 steps" in my doctor's terms. this goes beyond exercise: it's social energy, work energy, chores, thinking. american culture is very "you need to push past your limits". do not do it with long covid.
  2. i am being prescribed low-dosage naloxone. long covid sufferers have ambiently higher levels of inflammation, which affects your nervous system (via "muscle memory" as my doctor explained it) which is why long covid can be considered a nervous system disorder. the receptors that cause your body to create inflammation can be controlled with low-dosage naloxone. supposedly once i find the right dosage my fatigue and brain fog will be better. normal dosage is about 50mg, but low-dosage for this treatment is between 1-9mg.
  3. this shit is real. there are professionals who are successfully treating people like myself, who take this seriously, who know enough from research to understand how various symptoms are interacting despite it being fresh and new. if you are feeling thrown under the bus like i have been, it's important to know that you are not alone and that there is a path to recovery.

honestly i think there was another thing i was gonna say but uhhhh i forgor. hope this is helpful and gives you optimism and helpful advice if you're suffering long covid like me.

edit: i remembered!

  1. long covid can fuck with your ability to absorb tryptophan, which your body needs to produce melatonin, so if you are struggling with insomnia/sleep quality, then take melatonin!

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in reply to @kobold's post:

there are a decent number! but it is not simple to look for medical care of any kind, and I don't know that these clinics have marketing or SEO budgets. my job is partnered with a long covid clinic, and we get a lot of people asking about our clinic when there are ones much closer to their location -- they just don't have the SEO ours has.

long covid being a nervous system disorder makes a lot of sense. ever since i came down with a mysterious case of intense congestion in 2020, i've been itchy all the damn time, and the only thing i've found so far to make it go away is taking allergy meds every day. even then, sometimes i still get mild itching all over my body. i've also had chronic fatigue symptoms since 2020, so between the timing of it and the timing of the symptoms, i'm positive i have long covid

I hope LDN is helpful for you! I've found it to be problematic when being admitted to hospital for other reasons as ER staff may not be aware how it affects opioids. I've seen some people laminate little cards and stuff. Good luck with your journey!

Interesting. I have been slowly recovering from what I guess is "medium covid" - just coming up on three months, but most of the symptoms have reduced to an ambient level. I am extremely grateful it's not been worse - being fully vaxxed and immediately going onto Paxlovid can't have hurt. But even that small experience, as mild as it has been compared to so many others I know - wow what a perspective-changer.

I went from an outrageously fit and healthy 50-year-old that could out-compete most 35-year-olds, to someone who felt like they were a lazy 80 and got dizzy spells just standing up. DO NOT WANT.

This disease really sucks. Take it seriously.