Dianne's husband Kyle posted an update on her condition on her Patreon: https://www.patreon.com/posts/94956611
My wife has ME/CFS too, although not nearly as severe as Diane. She's able to live an independent life, but she cannot sell enough of her labor to survive on her own. This is what's known as a "mild" form of ME/CFS.
I wanted to talk about a snippet from Kyle's update:
In early July of this year, Dianna was doing physical therapy to try to regain mobility and independence. May and June were relatively good months, and although she was very sick, we know it's important to try and prevent physical deconditioning to the extent that is possible. In retrospect, we probably pushed too hard. She had a severe crash lasting months, and only started to come out of it in early September, just before Destin’s visit.
(Emphasis mine) This is a very common trap for caretakers to fall into, myself included. Trying to get better from ME/CFS is almost like a Chinese finger trap in that the harder you push to get over it, the deeper you get stuck into it. The only thing you can do is rest and wait for it to get better. This is deeply frustrating for patients and caretakers alike.
There are no known effective treatments for ME/CFS. It is currently a lifetime-disabling illness.
