sirocyl

noted computer gremlinizer

working on a @styx-os.

 

laptop.
                                                                                                     

"accidentally-vengeful telco nerd"
—Tom Scott

platform sec researcher, OS dev, systems architect, composer; Other (please specify). vintage computer/electronics nut.

I am open to tag suggestions - if there is something you want me to tag on my posts, leave a comment. <3


take a look at
this cool bug I found 🪲
discord
@sirocyl
revolt.chat (occasionally active)
@sirocyl#5128
styx linux OS project
styx-os.org/

whitequark
@whitequark

thinking about a back-and-forth i've seen a long time ago that went roughly "don't support Amazon, they're awful" "but I'm disabled and can't live without next day deliveries" "[paraphrased] you can walk, you should be able to get groceries too"

so we can walk. there's a grocery store nearby that takes less than 10 minutes to get to. i can go there easily. then, after i return, i regularly spend anywhere between one and four hours in a fugue-like fatigue induced state.

we live alone (as in, one body in the residence) most of the time, so it's not like there are many options: either go there ourselves, or book a delivery. and i work a full-time job.

the choice for me boils down to: spend one to four hours, which may end up displacing valuable things like rest, sleep, meetings, cooking, meals, and impacting my ability to generate income, or to book a delivery. the answer is obvious.

i think, ultimately, i don't care how bad Amazon is (replace Amazon with your least favorite company).

i spent too much of my life already caring about people who don't care about me back.

so far as i need to work full time (i.e. for the rest of this body's existence) i'm going to prioritize making my life bearable by whichever means it takes.


whitequark
@whitequark

there's a saying that "being disabled is a full time job [of its own]" and I find it very accurate. by having a full time job that generates income I more or less now have two; no wonder I'm always exhausted

ultimately I can manage just about anything a normal person can manage, in fact I can manage considerably more if I have to; however all of that is priced in blood. each exhausting trip to the grocery store that costs me hours (or, if it leads to a chain of cascading failures, say by interacting with PTSD, that could be days) isn't just a price I'm paying now but also probably some amount of hours or days off this body's total time for which it could reasonably function

for the longest time my answer to "should I pour my blood on the ground because you say it is the right thing to do" has been to take out a knife and start cutting, but I find it that at this point, my answer to that question became "no. fuck you" instead, and I like this a lot more.

one of my ambitions is to no longer have fibromyalgia (which isn't the only disability I have, but arguably the one that affects me the most). and as I've exhausted most of the ways I knew to approach it (I still think it's viable) I realize that the one thing I must do is to actually behave like I have it; to not overstep my limits, and to use resources freely in order to make that the case.


You must log in to comment.

in reply to @whitequark's post:

My partner and I – neurodivergent, but physically able – started getting groceries delivered a few years ago. Game changer. Mental load aside, I will happily make an environmental argument for grocery delivery: in our case, the store for our big shops is half an hour away, and a delivery truck that makes multiple stops absolutely burns proportionately less fossil fuel than us making the trip in our own passenger vehicle.

in reply to @whitequark's post:

I think this is completely reasonable. One of the best classes I ever took in college was "Medical Device Design" - it was the only class I took that actually emphasized the decision making portion of mechanical engineering as opposed to methodology and theory. It makes sense - when a device failure can mean death or injury, you've got to actually do the homework. One way this manifests in medical devices is limitations on reuse. Those little endoscopic end effectors on the surgical robot, for instance, could on average probably last over a hundred uses, but are typically discarded after something like ten uses, because if even a single cable or pulley fails during a surgery it can mess someone up pretty bad. This limit on reuse is explicitly weighed against environmental impact and cost, and the decision is made to prioritize the patient.

I guess I learned a sort of ruthlessness in that class - a human life is important enough to merit sacrificing on material choice or environmental impact or what have you. In the grand scheme of things it's not like the landfills are piling up with endoscopes or whatever. Do what you have to in order to survive and thrive.

Pinned Tags